School of Healthcare

Making decisions on behalf of a person who is living with dementia.

I’m exploring how carers make decisions on behalf of people who are living with dementia and who can no longer make decisions for themselves.

I’m interested in finding out which kinds of decisions make carers feel uncertain; where there is a sense of doubt or where carers aren’t sure what to do. I would like to know how carers make sense of these decisions.

I’d like to speak to people who act as carers and make decisions on behalf of people who are living with dementia and who can no longer make decisions for themselves. This could be the person with dementia’s

  • husband, wife or partner
  • adult child
  • another family member
  • neighbour
  • friend

The person who has dementia must be:

  • living in their own home, or
  • living in a care facility (such as a residential or nursing home)

Participants must be over 18 years old to take part.

Research participants will need to attend a face to face interview which will be audio recorded and will last about one hour. The interview can be arranged at a mutually convenient time and place. Please pass on these details to anyone else in Leeds that you think may be interested. Thank you.

  • Contact: Helen Convey - Tel: 0113 3431308 - Email: h.m.convey@leeds.ac.uk
  • Ethical approval reference number: HREC 16-041
  • Closing date for participants: 01 May 2018